Factors Driving Patient Decisions to Access Electronic Health Records via a Breast Cancer Online Decision Aid linked to the Patient Portal

Presentation Time: 08:30 AM - 08:45 AM

Abstract Keywords: Bioinformatics, Clinical Decision Support, Interoperability and Health Information Exchange, Cancer Prevention, Patient Engagement and Preferences, Human-computer Interaction
Primary Track: Applications
Programmatic Theme: Consumer Health Informatics

A critical strategy in limiting breast cancer (BC) mortality is the early identification of high-risk patients and implementation of risk-reducing measures. RealRisks, an online decision aid constructed by our team to provide education on BC risk and personalized risk assessment, allows users to choose to connect to their electronic health record (EHR) to extract requisite data to calculate BC risk via Fast Healthcare Interoperability Resources (FHIR). Using data from RealRisks user profiles, baseline questionnaires, and interview transcripts, we sought to understand the differences between the groups of patients who opted to download their data via the EHR vs. those who did not. A higher percentage of those who downloaded data (53.8% vs. 42.3%) identified as Hispanic/Latino compared to those who did not download. Thematic analysis suggested that while data security and privacy concerns may lead to hesitation, it is perhaps technological barriers that most significantly limit EHR download.

Speaker(s):
Anna Vaynrub, BA
Columbia University Medical Center

Author(s):
Anna Vaynrub, BA - Columbia University Medical Center; Subiksha Umakanth, MS - Columbia University Irving Medical Center; Harry West, PhD - Columbia University; Alissa Michel, MD - Columbia University; Jill Diamond, PhD - Sassafras Tech Collective; Stephan Constante, BS - Columbia University; Katherine Crew, MD, MS - Columbia University; Rita Kukafka, DrPH, MA, FACMI - Columbia University, Dept Biomedical Informatics;