NCI’s National Childhood Cancer Registry Data Platform: A New Data Sharing Resource for Researchers to Analyze Cancer Surveillance and Real-World Data

Presentation Time: 09:00 AM - 09:30 AM

Abstract Keywords: Data Sharing, Real-World Evidence Generation, Pediatrics, Population Health, Privacy and Security, Bioinformatics, Controlled Terminologies, Ontologies, and Vocabularies
Primary Track: Applications
Programmatic Theme: Public Health Informatics

The National Cancer Institute’s (NCI) National Childhood Cancer Registry (NCCR) Data Platform is a new, cloud-native data commons platform enabling researchers and people affected by cancer to explore, visualize, and analyze a new, nationally-representative dataset linking cancer registry and real-world data. This system will help the research community drive scientific progress to benefit children and adolescents and young adults (AYA) with cancer by providing longitudinal, detailed data that describes a patient’s entire cancer journey.

Speaker(s):
Johanna Goderre, MPH
National Cancer Institute