Safeguarding Personal Data in Reproductive and Women’s Health Care Services

Presentation Time: 01:00 PM - 04:00 PM

Abstract Keywords: Data Sharing, Health Equity, Population Health, Public Health, Interoperability and Health Information Exchange
Primary Track: Applications
Programmatic Theme: Public Health Informatics

Following the 2022 Dobbs decision, there were immediate, significant changes to the provision of reproductive health care services across the United States. A patient’s ability to receive reproductive health services now depends on their location of residence, and those with the means to travel for access are often putting themselves at substantial legal risk [1]. Additionally, sensitive data, such as reproductive history, contraceptive use, and abortion services, are particularly vulnerable to misuse and discrimination [2,3]. Although health care providers must comply with regulations like the Health Insurance Portability and Accountability Act (HIPAA) in the U.S., which governs the use and disclosure of protected health information, gaps remain in protecting data collected by third-party apps and non-traditional health services, which may not be covered by HIPAA [3]. Safeguarding personal data in reproductive and women's health care is essential to protect patient privacy and ensure trust in health services.

Modernization of data and information systems in reproductive and women’s health care services is critical. The medical informatics community is in a unique position as experts in health information, utilization of electronic health records, interoperability, and data analytics to be at the forefront of innovation and problem-solving for key issues impacting the provision of sensitive reproductive health services.

The objective of this workshop is to highlight evidence-based practices and encourage solution-based discussion. This collaborative workshop provides a networking platform to bring together researchers, clinicians, policy makers, consumers, and trainees to leverage our collective expertise to address issues surrounding data and reproductive and women’s health care services.

Speaker(s):
Karmen Williams, DrPH, MBA, MSPH, MA, CPH
City University of New York

Azra Ismail, PhD
Emory University

Angad Singh, MD
University of Washington

Annessa Kernberg, MD
Oregon Health and Science University

Author(s):
Alyssa Hersh, MD, MPH - Oregon Health & Science University; Ayo Babatunde, PhD - OHSU; Jill Inderstrodt, PhD/MPH - Indiana University Fairbanks School of Public Health; Timothy Wen, MD MPH - UC San Diego; Sabrina Hsueh, PhD - Pfizer; Gabriel Labbad, MD - Cedars-Sinai Health System;