Invited Session: Increasing Patient-Centered Research at Scale: PCORnet Technology Enhancements


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Presentation Time: 10:00 AM - 11:30 AM

Abstract Keywords: Data Sharing/Interoperability, Data Transformation/ETL, Patient-centered Research and Care, Sustainable Research Data Infrastructure
Primary Track: Clinical Research Informatics
Programmatic Theme: Emerging Best Practices for Clinical Research Informatics Operations

PCORnet ® aims to conduct national-scale, patient-centered comparative outcomes research through collaboration among 78 health systems within 8 clinical research networks (CRNs). These CRNs are currently engaged in a coordinated technology enhancement effort designed to support increasing analytic complexity across diverse computing environments, each presenting clinical data harmonized according to the common data model (CDM). This panel brings together informatics leaders from CRNs and the PCORnet ® coordinating center to discuss requirements and progress in implementing solutions as part of this program. Panelists will discuss a variety of different approaches adopted across CRNs and associated technical and governance implications as well as efforts aimed at maintaining interoperability and balancing resource demands on participating health systems with the necessity of conducting analyses that meet current research needs. This discussion will be valuable for participants in, or potential members of, research collaborations that involve the sharing of clinical data via distributed querying.
Moderator:
Mark Weiner, MD
Weill Cornell Medicine / Population Health Sciences

Speaker(s):
Charles Bailey, MD, PhD
Children's Hospital of Philadelphia

Mei Liu, PhD
University of Florida

Eugene Sadhu, MD
University of Pittsburgh

Abu Mosa, PhD, MS, FAMIA
University of Missouri School of Medicine