PCORnet® Studies: After 10 Years, What is Fit-for-Purpose Informatics?

2025 Informatics Summit On Demand

Presentation Time: 03:30 PM - 05:00 PM

Abstract Keywords: Data/System Integration, Standardization and Interoperability, Clinical Trials Innovations, Patient-centered Research and Care, Learning Healthcare System, Infectious Disease Modeling
Primary Track: Clinical Research Informatics
Programmatic Theme: Real-World Evidence in Informatics: Bridging the Gap between Research and Practice

Since 2014, the Patient Centered Outcomes Research Institute (PCORI) has invested over $900 million in the infrastructure of PCORnet®, designed to empower people to make informed health care decisions by enabling clinical research that is faster, easier, and, most importantly, more relevant to their needs. PCORnet is a large, highly representative, national “network of networks” that collects data routinely gathered in a variety of health care settings, including hospitals, doctors’ offices, and community clinics. These electronic health record data are standardized against the PCORnet Common Data Model (CDM) and highly curated. This presentation will highlight ongoing research projects and programs to demonstrate the informatics needs of observational epidemiology, national-scale surveillance, prospective trial research programs, and the perspectives of patient and clinician collaborators. This presentation will showcase research programs aiming to utilize real-world data and underscore the importance of collaborations between clinical researchers, public health professionals, informaticists, clinicians, and patients in improving the future of embedded research.
Moderator:
Greg Merritt, PhD
PatientisPartner

Speaker(s):
Emily O'Brien, PhD
Duke University

Jason Block, MD, MPH
Harvard Medical School

Kathleen McTigue, MD, MPH
University of Pittsburgh

Keith Marsolo, PhD
Duke University

Author(s):